A pilot project for compilation of rare neurological diseases in a single national database
This project developed by Neurocenter Finland will create an electronic register for rare diseases in collaboration with three research groups. Experts in rare neurological diseases at North Karelia Central Hospital, Oulu University Hospital and Helsinki University Central Hospital have joined forces for a pilot project aimed at creating an electronic register for the most commonly […]
A National patient register plays a key role in treatment monitoring and treatment for genetic motor neuron disease
The disease-specific diagnostics for Genetic Motor Neuron diseases (MND) have advanced a lot recently. Researchers Mari Auranen (Ph.D.) and Emil Ylikallio (Ph.D.) from Helsinki University Hospital are working with a patient register to improve research and treatment for these diseases. For rare diseases, the register plays an important role in allowing researchers and doctors to […]